It’s freaking crazy that I am finally able to say it but… I started a podcast!
This is the MOST exciting, scary, terrifying, daring leap I have ever taken but I am so flipping excited.
I have been planning, thinking, dreaming and talking about doing this for 6 months now and I couldn’t be more thrilled.
What’s a podcast
According to TechTerms.com
The name “podcast” combines the terms iPod and broadcast into a single catchy word. As the name suggests, podcasts are audio and video broadcasts that can be played on an iPod. However, because podcasts are downloaded using Apple iTunes and can be played directly within the program, you don’t actually need an iPod to listen to a podcast.
Podcasts are often distributed in “episodes,” meaning new podcasts are made available on a regular basis. Users can subscribe to these podcasts via podcast listening apps on their smart phone or computer, as they become available.
I have been listening to podcasts for a couple years now. There is something about this medium that I absolutely love. I think one of the biggest reasons is that I can listen while I am doing other things. That is huge when you are a mom because who has time to sit and read or watch a video when you have laundry, taxi driving the kids, cleaning, cooking and all the other bazillion things that we do every day.
Where is the Special Needs Parenting Category
As I have listened to a BUNCH of marketing, self-help, spirituality podcasts, the category that I really wanted to hear from was the “special needs parenting” category. Well, there really isn’t any. I mean, a few but not anything that really relates to what I go through every day.
So I had an idea. What if I made a podcast and talked about all the things that us special needs parents talk about.
I remember when I first realized that raising Remy was going to require me to completely change everything I knew about parenting, I looked everywhere to find a guide, a friend, a show, movie, song, podcast, blog to help me along. I knew that I couldn’t be the only one going through grief and overwhelm and PTSD. But as I looked, I never found anything that could really help.
The Only Way Us Parents Get Through it
The biggest blessing is when Remy got her PCDH19 diagnosis and I found the Alliance. The Alliance was created by parents that wanted to connect with other parents going through the same journey as well as find some answers.
Through finding the PCDH19 Alliance, I met my second family and some of the very best friends I could ever dream of.
They understood what watching their child suffer was like. They understood that no one really has any good answers. They understood that when you don’t find answers, you figure them out on your own. They understood that even though things are so so so hard, there is still hope and love and compassion in the world.
What I found by meeting these other parents, is that (not to discriminate, but kind of) the parents of children with special needs are some of the most amazing people in the world. I LOVE them, and here is why
The BEST Things About Special Needs Parents
They have a compassion and empathy for all suffering. A person who has had to watch their child go through so much bad stuff tends to just care about people going through bad stuff. I guess its because that is what we hope we can get from others, is compassion and understanding.
They are non-judgmental. I think that when you have a child that is considered “unfortunate” all you want is for them to be recognized as the amazing children that they are instead of a sad label. Before having a child with a disability, you are more likely to make conclusions about people and parenting. When you go through tough times yourself, you realize that no one can really judge anyone and that you never really know peoples journey. If you don’t know what I mean, here is an example. Do you ever see those parents that have leashes on their kids? You think, “what kind of lazy parents are going to treat their kids like dogs. I would NEVER lease my kid.” Well, then you have a child that is on the spectrum and has no awareness of their surroundings and runs off every time you are in public. Then you grab that leash because you want to keep them safe. See, no more judgment.
You give them an opportunity to take a break and they will show you a good time. I have had some of the most fun and unforgettable times when I get a chance to hang out with other special needs parents. The biggest gift you could ever give a special needs parent is a night away from the kids. You will be their hero.
They are strong, fearless mama bears. Oh man. Here is a big one. Don’t let all that compassion, empathy and non-judgment fool you. You mess with a special needs parent, you better watch out. There is a drive and rage that sits just below the surface and if you treat one of these mothers or kiddos with any sort of pity, being unfairly treated or dismissed, you better step back. These moms will go (and have gone) to the ends of the earth to protect their little cubs. If you feel like messing with them, you better sleep with one eye open, just saying.
So I guess what I am saying is, I LOVE being part of this community and having the opportunity to serve you all.
But to get back to my point.
I am hoping that I can share some of our experiences to maybe help anyone out who is a step or two behind us. I might not know everything, but maybe something I have learned can help out someone else.
This is going to be so much fun. Please let me know what you think, suggestions on topics and ideas on certain people you would like to hear from. If you subscribe to the podcast on any of your podcast directories, there will be a new episode available every week.
Thank you, everyone, for stopping by and joining me on this very exciting new venture.